For the last 6 months i have been suffering from non-epileptic seizures. I want to share what they look like, as I’ve struggled to get an MRI referral on the NHS and as the seizures are growing increasingly frequent I find myself with memory loss, constant fear and paranoia, and a number of symptoms to go with it.
These symptoms include numbness in my stomach. we discovered I had a burst ovarian cyst, leading to irregular periods, heavy blood loss and extreme pain in my genital region. I have had a pounding, swelling feeling in my head and immense pressure behind my eyes and in my ears, which have been leaking brown fluid. I’ve also suffered from what I can only describe as a feeling of having a heart attack, separate to the occasions of these seizures, but leading to extreme chest pains and numbness under my ribs and in my arms.
These symptoms have all but destroyed my life. I’m an artist, and I’m no longer able to draw. I used to cook and bake and go to college. I have dreams of travelling the world. And now, I can’t do any of that. I feel like my life has about ended. I wanted to go to Japan.
But now I’m going through these fits, seizures, whatever they are, sometimes up to 15 times a day, whether they are minor or major. It has gotten to a stage where the hospital is no longer able to take me because there is nothing they can do to ease the symptoms but give me morphine for the pain that comes after.
If nothing else, I hope that sharing will help to educate some people on the nature of these… well, crazy fits I’ve been having. I hope to god - and believe me I’ve very much become a praying woman since all this has begun - that no one else is suffering what I’ve been suffering too.
Arigato Buddah, for allowing me to live this far. I’m going to keep fighting for my family and friends. But this is becoming so difficult to do that I don’t feel like fighting anymore.
I’d like to die now.
Bless you all. I hope this helps someone. Anyone.
Me and my family are looking into getting a private MRI scan, so anyone willing to donate to my patreon or tip jar, I’d be sending good vibes.
All things considered, stay cool my good dudes. Life’s a rowdy rough-tough ride. But I can’t wait to get back to being my old shitposting smack-talkin self for all y’all dummies.
bless your hearts and thank you for your time y’sweet beans!
seizures getting worse, of the scale of a 1 to 10 rating
bit my tongue till it bled the other night
one of them lasted 40 minutes
need money for travel, food and medical expense
thank you for your kindness
oh my god, you guys, we’re getting there – im getting there with all the help youve given me
thank you all from the bottom of my heart, you are all so kind for even sharing this horrific video at all
if we find enough money to fund privately then all spare donations will go to charity!
seizure lasted an hour and 40 minutes last night, needed seizure meds, diazepam, morphine, and more in the A&E – lucky i had the NHS looking out for me
still need private referral, since these are not epileptic seizures
please help
diazepam dosage not enough, NHS trying their best but need more specialist help
It is absolutely bloody INSANE that they won’t give you an mri referral!!! Holy crap! Does that happen often in the UK?? How can this not get you an mri referral?? I’m shocked. I’m on medicaid here in the US and my rheumatologist was going to get me an mri just for having pains in my thigh.
Good Lord, how delicious! I wanna do that! The next time I’m in a cathedral, I’m doing it.
As she stood inside an ancient and empty church in Montefrío, Spain, Malinda Kathleen Reese belted out one of the best Christmas carols of all time-“O Come, O Come Emmanuel” and the end result was just heavenly.
I’m obsessed with this because A. Victorian Christmas Carols B. European Cathedrals C. It’s gorgeous and fuckin choristers are my favorite
PLEASE DO NOT THROW THE YA GENRE UNDER THE BUS it is filled with diversity that goes far beyond whatever makes it to the movies! Please give it a chance!
